Is the (Eating Disorder) Treatment Your Child is Getting FBT?

Family-Based Treatment:  How Do You Know Whether Your Child Got The Real Thing?

When I speak to new families about Family-Based Treatment (FBT), I often find that they are confused about what it is and what it isn’t.

What is FBT?

Family-Based Treatment (FBT) is a type of evidence-based treatment for child and teen eating disorders. This treatment was developed at the Maudsley Hospital in London in the 1970s and 1980s. Doctors Lock and Le Grange manualized it into its current form in 2001. Because of its name, FBT is often confused with more general “family therapy.” Be careful, because these are not the same thing—while both involve the family, FBT is a very specific, behaviorally-focused therapy.

While a treatment that includes some elements of FBT—but falls short of the full manualized treatment—may work for some people with eating disorders, it may not work for more challenging situations. When FBT doesn’t work it is important to know whether the teen has had an adequate course of the true treatment in its evidence-based form. This can be tricky. In the field of psychotherapy, most therapists identify as eclectic, meaning they adhere to no single therapeutic orientation but combine techniques from several (just scroll through any Psychology Today therapist profile to get a taste for how many different theoretical approaches most therapists endorse).

We don’t yet know which elements of FBT are critical to its efficacy and make it such a successful treatment. This would take expensive dismantling studies in which different partial treatments are tested against each other. Except for studies documenting a separated FBT (where only the parents attend sessions), no such study has been cited in the literature. Until we have good evidence that suggests otherwise, treatments that stay true to the original, already-tested treatments are the safest bet.

FBT Is Often Used To Describe Treatment That Is Not FBT

I once worked with a patient with panic disorder who had had previous treatment. He told me that his previous therapist had conducted cognitive-behavioral therapy (CBT), widely accepted as the best evidence-based treatment for panic disorder. When I dug deeper, I found that his therapy had included no exposure to the sensations of panic—considered to be the core element of CBT treatment for panic disorder.  Instead, the treatment had focused on discussing his anxiety thoughts—a very different protocol. From this experience, I learned to inquire carefully about the treatment my patients have previously received before accepting that it cannot work for them.

So it is with Family-Based Treatment. Sometimes parents tell me that they think they tried FBT but are not sure. If your child was treated in an academic center, it’s more likely they got the evidence-based treatment of FBT in its full form. However, some parents who tell me that FBT didn’t work also tell me:

• They did FBT on their own, with no therapeutic support. (This is parent-led refeeding and NOT FBT.)
• They had meals with their child, but the therapist met primarily with the teen alone (This is NOT FBT.)
• They didn’t supervise all meals because their child resisted them (This is NOT FBT.)

In each of these situations, it is obvious to me that the treatment is not what I would consider FBT. And while it is true that including some aspects of FBT or even a “watered down” FBT may be better than no FBT or parent inclusion at all, it’s important to know whether your child had the real thing or not, especially if they end up needing more or different treatment.

Often, parents who tell me they struggled with renourishing a child on their own find that things go much better once they started working with me or another therapist. That’s not to say that parents should never try to renourish a teen on their own—just that supporting a child with an eating disorder is extremely hard work and best done with the support and guidance of a professional at their side.

Signs Your Child Received FBT

Accordingly, I created the checklist below. Parents may use it to determine whether the treatment their child received (or is receiving) is really FBT. To how many of the following statements can you answer “YES” (the more the better)?

• Our therapist received training through the Training Institute for Child and Adolescent Eating Disorders.
  • The basic training is a 2-day workshop. Have they attended one?
  • Have they received or are they receiving clinical consultation or supervision by a staff member of the institute?
  • Are they certified in FBT by the Training Institute? (This means they have completed the 2-day training and received 25 hours of consultation by a staff member around their treatment of 5 patients.)
• Have they received equivalent training such as the one led by Dr. Muhlheim and Katie Grubiak, RDN for EDRD Pro?
• Our therapist owns, seems familiar with, and refers to the FBT treatment manual.
• Our therapist refers to and acknowledges the three phases of FBT:
  • Phase 1 —full parental control
  • Phase 2 — a gradual return of control to the teen
  • Phase 3 —establishing healthy independence
• Our therapist is familiar with the work of Drs. James Lock and Daniel Le Grange, developers of the FBT treatment.
• Our therapist adheres to the five principles of FBT:
  • I was specifically told I was responsible for restoring my teen nutritionally and interrupting behaviors that interfere with recovery (including bingeing, purging, and overexercise). I was specifically told I was responsible for planning, preparing, serving, and supervising all meals.
  • I was told we don’t know for sure what causes an eating disorder and it doesn’t matter.
  • Initial attention of treatment focused solely on restoring health including weight gain and stopping eating disorder behaviors.
  • Rather than being given prescriptive tasks, I was empowered to play an active role and to discover those strategies that worked best for my family and the child whom I know best.
  • I was taught to externalize the eating disorder. I was taught that the eating disorder is an outside force that has hijacked my child, threatens their life, and makes my child do things they wouldn’t normally do. My child did not choose the eating disorder.

Additional Signs Your Child Received FBT

• I have had a family meal at the therapist’s office. (Or online in the presence of the therapist if doing FBT virtually).
• Our therapist spends most of the time with the full family, meeting only briefly with the teen alone at the beginning of the session (or in the case of “separated FBT,” all of the time with parents).
• Our therapist or another member of the treatment team tracks my child’s weight and gives me feedback after every weigh-in on how he or she is doing.
• I was specifically told I am responsible for supervising all meals and snacks to ensure completion. If purging has been a problem, I was told to supervise the child after eating to prevent purging.
• If my child has been exercising excessively, I was told to prevent this.
• After weight was restored and bingeing and purging and other behaviors had ceased, our therapist guided me in gradually returning my teen control over their own eating.
• I was told it was important to be direct with my teen about eating adequate amounts of food.

  

• Our therapist discusses the importance of both “state” and weight to recovery. Our therapist explains that weight recovery is a step towards psychological recovery, but not an end goal in itself.

Dead Giveaways Your Child Did NOT Get FBT

Below are some indicators that your child might not have “gotten FBT” and might be receiving some conflicting messages:

• I have been told that we, the parents, had caused the eating disorder.
• The therapist spends the majority of therapy time alone with the teen.
• Our therapist spends a lot of time talking about the past. This includes reasons my child wanted, needed, or otherwise developed the disorder.
• A dietitian has met alone with my teen and given them nutritional recommendations.
• My child has been given a meal plan.
• I have been told that it is an option to not supervise all meals or prevent all purging.
• The FBT therapist has provided individual CBT, DBT, or ACT with the teen during the weight restoration phase.
• I have been told from the start of treatment to “not be the food police.” (In FBT, this might happen toward the end of treatment, or in Phase 2 with an older teen.)
• My child has been in charge of making their own meals from the outset of treatment.

Summary

In conclusion, FBT has been proven to be the most effective treatment for teens with eating disorders in clinical trials. That said, not every treatment works for everyone. In my opinion, it is best to start with something that has a backing. If that doesn’t work, you might then try something else. When you have sought out an evidence-based treatment, it’s important to make sure you’re getting the treatment in its researched form.

At EDTLA, we provide FBT–the real thing–to teens in Los Angeles (and online throughout California). We can also recommend dietitians and medical doctors to add to your treatment team.

Get Family-Based Treatment for Your Teen in California Now

If your teen has an eating disorder, you do not have to battle it alone. Our FBT-trained therapists can help. Contact us now.